By spinytim on January 23, 2011
Posted in MS poisons my dreams |
By spinytim on January 21, 2011
Posted in MS poisons my dreams |
By spinytim on January 21, 2011
Posted in MS poisons my dreams |
By spinytim on December 28, 2010
Posted in MS poisons my dreams |
By spinytim on December 28, 2010
Posted in MS poisons my dreams |
By spinytim on December 14, 2010
Wholly stolen from Johnny P’s new blog Living With Multiple Sclerosis
Some rules that I live by
Think before you act – don’t just jump up and do something because you’ve done it for years before you got MS. Your body may not work the way it used to. Sit back and visualize first what you have to do or where you need to go.
Have a plan – plan each step or action first in your mind. Think about what it’s going to take to get from point A to point B before taking action. Break up longer ventures into smaller segments and do one segment at a time. Plan rest stops along the way and use them until you know for sure that you can bypass them. Put a cordless or cell phone in your pocket. Keep your hands free for grabbing if need be.
Don’t take chances – the last thing we want is to end up on the floor. Analyze the task at hand. If you’re not sure you can do it, don’t do it alone. Wait until someone is around that can spot you in case you need a lending hand along the way. If your at all like me, and many of you are, you don’t like to ask for help. MS’ers, are typically movers and shakers. think of the worst case scenario. if you can manage that worst case, then go for it. i do. but, if its going to mean putting you in a situation you don’t want to be in or don’t want to deal with, asking for help is going to save you grief. choosing when to ask for help is a learned behavior. it really depends on ones own abilities. you’ll learn..Learn and become aware of your capabilities. Once you know you’re able to do it alone, you’ll be more comfortable doing it again.
Plan for the worse – Avoiding falls is our number one priority. If you have a task that you routinely do and if it ever resulted in a fall, even once, there’s a chance that it might happen again. Be aware of your vulnerable task. Put a cordless phone on the floor in the general area just in case. IE. Getting in and out of the shower.
Save Energy – don’t rush, Try to do things right the first tim
Posted in MultipleSclerosis, ppms | Tagged #multiplesclerosis, multiple sclerosis |
By spinytim on December 11, 2010
Posted in MS poisons my dreams |
By spinytim on December 8, 2010
Posted in MS poisons my dreams |
By spinytim on November 27, 2010
Posted in MS poisons my dreams |
By spinytim on November 15, 2010
coming to the end of the line
Posted in MS poisons my dreams |
By spinytim on November 12, 2010
Posted in MS poisons my dreams |
By spinytim on November 10, 2010
#ppms #multiplesclerosis
Posted in MS poisons my dreams |
By spinytim on November 10, 2010
http://www.recreatingtampa.com/2010/10/22/caleb-and-ms/
Spiny Tim is a haunting journal of a local artist’s battle with primary progressive multiple sclerosis (PPMS).
“It is difficult for me to write about my condition, because to commit to paper, so to speak, is to make it real. And even now, I am loath to make it real.
“Every morning I wake diminished, and I think to myself: if I don’t get any worse than this, then I will be able to go on. I will be able to relieve myself, put some food in my stomach, take care of the dog and the cat, and go be productive for someone. Every morning I wake to find that my hands are more useless, curled, and insensate, add that my legs are more distant meat objects, useful as stilts, perhaps, but not much else.
“And every morning I wake with fewer words.”
Spiny Tim once kept a blog titled Calebism, where he posted occasional images of his art.
Posted in MS poisons my dreams, MultipleSclerosis, ppms | Tagged #multiplesclerosis, Demyelinating Diseases, MS Multiple Sclerosis, multiple sclerosis, ppms, primary progressive Multiple Sclerosis |
By spinytim on November 2, 2010
Living the MS Life: Primary Progressive MS
Primary Progressive MS is the saddest MS course to me. About 10% of people with MS have PPMS. From the beginning one who has this type has gradual continual worsening of MS symptoms. There may be a little fluctuation and temporary improvement but no relapses. There is no real treatment for this type of MS and most have trouble walking in various degrees. My Mom had Primary Progressive MS and it was so upsetting to see her get worse right before my eyes and I could do nothing.
Technorati Tags: ppms
Posted in MultipleSclerosis, ppms |
By spinytim on November 1, 2010
Posted in MS poisons my dreams |
By spinytim on October 28, 2010
Chronic cerebrospinal venous insufficiency and the doubtful promise of an endovascular treatment for multiple sclerosis — Dorne et al. — Journal of NeuroInterventional Surgery
Data against CCSVI role in MS
Although the Zamboni papers have been quite supportive of CCSVI, there are a growing number of papers that raise serious questions about its validity. In early 2010, Khan et al described a number of independently accepted characteristics of venous disease and MS that contradict the CCSVI theory.6
1.
Similar to other autoimmune diseases, MS is more common in young women while chronic venous insufficiency syndromes are not.
2.
There are well known strong epidemiological associations between MS and geography, ethnicity, sun exposure, low vitamin D levels, gender, genetics and immigration studies that are not mirrored by chronic venous insufficiency.
3.
Central veno-occlusive disease can lead to syndromes of idiopathic intracranial hypertension, ischemic and hemorrhagic infarcts and edema, none of which is typically seen in MS patients.
4.
Vascular abnormalities related to chronically diminished venous flow would be expected to increase over time, yet after the age of 50 years the incidence of MS is quite low.
5.
There is no other model of decreased venous drainage and an organ specific immune response.
6.
Transient global ischemia is known to occur with jugular insufficiency but this entity is not seen in MS.
7.
Radical neck dissections remove all jugular veins but they have never been seen to cause MS.6
Posted in MultipleSclerosis, ppms | Tagged Chronic cerebrospinal venous insufficiency, multiple sclerosis, Paolo Zamboni |
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